The last few days have been a little rough. Grace did get some swelling and mouth sores--but her temperature hovered between 99.3 & 100.9--thankfully, it never reached 101.5 (that's the cut-off for her to be hospitalized)!! We've been able to semi-control the pain with a Tylenol/hydrocodone mixture! She'd be pretty good and comfortable for an hour to 2 hours, but by 2 1/2 hours she was uncomfortable and by 4 hours when her next dose was due she's been beside herself. And then the cycle starts again. This is how she was last time when her mouth was beginning to heal--her mouth is already beginning to slough off--it's painful and she's really tired, but it's been drastically better than last time. We've been able to be at home and sleep a tiny bit better--even interrupted sleep in your own bed is better than at the hospital. It's really hard to see her in pain. She just keeps doing her best, she gets frustrated easily when we don't understand what it is she wants or needs. But she has all her blanket's and stuffed animals and cards around that help her feel better. Sometimes when we walk into the room she'll just be looking at the posters we've made out of all the cards and well wishes she has received. She'll reach out and touch it card or picture. It helps calm her down and she's able to rest.
We appreciate all the support, help, love and prayers we continue to receive.
We appreciate all the support, help, love and prayers we continue to receive.
1 comment:
We appreciate the updates, I'm sure it isn't easy for you, but we all read them and cry and then say a prayer. Trials are never easy, but sure are making you stronger than you ever thought possible. Grace is a beautiful bald little lady. I thought it was very nice for Santa to write to you, Grace. I'm sure you are being a good girl, because Christmas is only 5 months away!! We can't wait. Hope all goes well with the mouth sores!
Shawn, Amy and your Az cousins
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