We are at home and loving it. Grace is doing well and eating more than she was at the hospital. Her skin is getting mottled and is peeling. The mouth sore shouldn't really be a problem this round (cross your fingers). We are hoping to be able to keep her home until next weekend!! Monday she has a clinic visit and blood transfusion scheduled.
Every time Rod or I walk through the door Jessica and Jane are there in an instant hugging and kissing us and holding hands--then they just follow us around and keep saying, "we miss you so much!!" We've been rearranging schedules etc. to be able to spend more time with them. There's a great organization called 'Super Sibs' that is dedicated to helping the siblings of cancer kids--it also has a guide to help us know how to make them feel loved and special. So many people helping families get through these heart wrenching experiences--it still amazes us--the cable guy was over here yesterday looking at our connection and he just kept saying, "I have 4 kids, it breaks my heart." Complete strangers offer to pray for us or put us on their churches prayer roll. We are so grateful for good people, family and friends.
Adam's basketball team
7 years ago