Well, thankfully her mouths sores are on the mend--her white blood cell count came way up--YEAH!!! But it also means that it's time to start her 2nd round of chemo.We were admitted to the hospital on June 15th--one month later we have been at home only 3 days (including today). Tomorrow it's back to the hospital for a week. The chemo she gets this week is exactly the same as the last round. Gracie's doctor gave her a medication that is approved for bone marrow transplant patients that helps with the mouth sores. The medication is taken 3 days before and after chemo. She will only be able to take it one day before and 3 days after. It's more important to start her next round than to prevent the mouth sores. But the next time we have this chemo scheduled she'll get all 6 days of the medication.
She's doing really well, she gets tired quite quickly but we were able to have a small party for her birthday last night. Lots of Tinkerbell--plates, cups, napkins and even a cake!! Half-way through her party she had to go lay down. I have to say she slept so well last night without anyone checking her vitals or administering medications all night.
Sunday was the first she had smiled since the mouth sores started but yesterday she laughed--it was awesome to see her giggling and smiling.
The unknown of this is difficult. We were thinking we'd have her home for a week or so but it just didn't work out. Hopefully, with the new medication we'll have better luck.
Jessica and Jane came home yesterday!!!! Everyone was happy to be all back together. My mom came also. We are so glad she can help us right now. Jessica and Jane will be able to have some stability.
We shaved Gracie's head--her hair was falling out by the handfuls--afterwards the nurse came in and said--"Wow!! that new haircut really makes your eyes pop!!" I said, "Sinead O'Conner has got nothing on you!!" And the nurse replys, "Gracie, 'nothing compares to you'." ha ha ha
Very funny!! (if you are too young or old--"Nothing Compares to You" was Sinead O'Connor's hit song)
Very funny!! (if you are too young or old--"Nothing Compares to You" was Sinead O'Connor's hit song)
3 comments:
She is the most beautiful bald person I have EVER seen. She really is a cutie. I'm glad that she got a birthday party and had some fun. I'm also glad that you got to see her laugh, I'm sure that warmed your heart. She's such a brave little toaster!
Oops, I keep forgetting that people other than in my family know who Narnianne is...it's me Holli Clark! :)
What a trooper! We are all rooting for her!
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